Story
I feel a bit awkward starting this page. My medical situation is beginning to sink in, and I realize I need to stop being so prideful and accept help, mainly since my husband, AJ, relies on driving for his work to make money. When he is responsible for taking me to all these appointments, he can't make much money. A close friend suggested using the Meal Train website, but we've been so overwhelmed with love and support that we have received numerous gift cards already so, I need help the most is with rides to and from my multitude of doctor's appointments until I'm authorized to drive again, which may not be until March 2025. Let me share my story. I’m not sure when it all began, but I started experiencing pain in my body and thought I just needed a chiropractor. However, nothing helped. Eventually, I found myself unable to walk and used crutches and then a rollator. My husband and I argued about going to the doctor because I was determined to finish my job and clean out of the office before the end of the month and also before seeing any doctor for what I thought wasn't a big deal issue. My husband ordered blood tests for me and scheduled an appointment with my primary care doctor. Mind you my husband was taking me to and from work, and every where during this time. When we went to talk to my primary doctor she witnessed how bad I was walking and ordered me to go to Mercy Allen ER immediately. Then I was transported by ambulance and admitted to Mercy Lorain where I spent time from November 19 to 26. The doctors informed me that I had about five tumors in my body, with the largest one (golf ball size) located in my head. This tumor affected my ability to fully comprehend or express myself about what was happening. I accepted the situation and trusted the medical team. It was not fun being in the hospital being woken every two to four hours for medication and vital sign checks. On November 26, I told the doctors I wanted to go home, and they discharged me, leaving me with a shaved head and a large incision on the left side of my head. Even after surgery, I still have tumors in my body that flare up, pressing against my nerves and causing excruciating pain, every now and then without notice. It’s likely due to my tendency to push myself too hard at times. As a result, I can barely walk, sleep, or do anything (for the last month). While going through my doctor's notes for one of my therapy sessions, I discovered that I have metastatic disease, or Stage 4 cancer, which is growing in my body. Although it's not curable, it can be treated. I spoke with a friend recently who informed me she knows a lady that has the same type of cancer and she's be living for 10 years so there is hope. That comforted me a lot. I’m not feeling sad, angry, or depressed; I’m just anxious about paying bills and getting my life organized. I haven’t slept for more than three hours in a month. Now, I'm preparing for follow-up appointments with my doctor, and the next step involves cancer treatments. This is where I need the most help—getting to these appointments, which will likely start after the new year. I’m unsure how often or how long these treatments will be. That’s why I created this page—to ask for assistance from my local network of friends.
Special Notes
Thank you to all of you for helping me get to my doctor's appointments since I may not be able to drive until March, and it gives AJ a break. If my appointment is an hour or less, I hope you can stay. If it is over an hour, I usually try to break it into someone dropping me off and then someone else picking me up. My physical and occupational therapy is usually 2 hours, and I'm going to them once a week for the next twelve weeks on Monday. I have yet to put it on my calendar until I know more about my cancer treatment schedule. I hope to add that on December 20th. We moved last year to 94 East Lorain Street Oberlin.
Care Calendar
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