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Support for Kristina

Minneapolis, MN

Story

Kristina had a beautiful baby boy named Zion a couple weeks ago and shortly after found out that he was diagnosed with a very rare terminal disease called ‘Krabbe Disease.’ Untreated Krabbe has a very poor quality of life, most children do not live past 3 years old. There is no cure for this condition. Recently, there have been made a treatment available that will prevent the rapid progression of this disease. They are staying in a hospital for the time being for treatment and I’d love to give her some support. Please pray for miraculous healing for Zion! If you would practically like to help, the best way to give at the moment is through gift cards so that Kristina would be able to order meals / get them delivered to her vs. homemade meals being dropped off. There are also options to purchase gift cards to stores for shopping / other needs or gofundme for medical costs ect. Please pray for Kristina and her family as she navigates the day to day care for Zion, wisdom to all the doctors involved on his case, strength for his little body to endure the treatments and ultimately that Zion would receive full healing in Jesus’ name! Here are a few details below that have been shared on some of their other pages to give some context and info: _________ Krabbe is a rare genetic mutation and is terminal with an expected lifespan of just a few years without treatment. If the baby is not diagnosed through the newborn screenings, and begins to show symptoms before diagnosis, it is too late for any treatments to be helpful. Krabbe, pronounced "creh-Bay", is an enzyme deficiency that affects nerve endings. Basically, his bone marrow doesn't make the enzyme necessary to clear away a certain toxin that naturally builds up around his nerve endings. Without the enzyme, the nerve endings throughout his brain and body are being destroyed. There are a series of treatments available to those infants who test positive in the screenings, and the most significant treatment, a cord blood stem cell transfusion, must be completed before the baby is 30 days old for the best outcome. Zion is beautiful and looks and acts like every other newborn at this stage. As the disease progresses in his body, he may experience symptoms like a loss of abillity to feed well, loss of motor function, seizure, blindness, deafness and finally, death. The treatments available are not a cure. The goal of these treatments is to improve Zion's quality of life, to lessen pain and debilitating symptoms, and to hopefully increase the longevity of his life. This week will bring the first steps toward the cord blood stem cell transfer: chemotherapy. Zion's immune system needs to be suppressed so that it doesn't reject the donor stem cells that will ultimately provide him with better health. Kristina and the family would appreciate prayer for Zion's resiliancy as well as for the careful and wise doctors to be inspired by the Great Physician.

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