Hello, Welcome to the page our family created for those who would like to support us on our journey with Alex William the warrior. Alex was born in 2018 with VACTERL Association, which is an extremely RARE condition affecting 1 in 40,000-60,000. Each letter of the acronym stands for a different system in his body that has been affected; vertebrae, anus, cardiac(heart), trachea, esophagus, renal (kidney), and limbs (which for Alex is his hands). From day one of life, Alex has proven over and over again that he is a determined little guy who will overcome all obstacles that are thrown at him. So far Alex has undergone 7 surgeries, which we travel to Boston Children's Hospital for. He is seen by wonderful specialists and and surgeons, yet this often time means splitting up our family and being apart for weeks at a time. For a long time I have felt a bit funny asking for help when needed, but I also know that there are friends, family and probably even strangers who might like to help, as we try to help others as a family when we can. I will be posting updates, wish lists, and ways that people can help. If you would like to help, we would be so appreciative. If you are unable to we completely understand, as everyone is fighting their own battles. Much love, from our family to yours.