Story
Hello everyone! First off, thank you for taking the time to consider helping our family as we get through this season of healing. We could not do it without the prayers, love and support from our Dothan family and appreciate each and everyone of you more than we can ever express. I have been diagnosed with Miller Fisher Syndrome, a rare variant of Guillain Barre Syndrome. It attacked my nervous system, leaving me with left sided facial paralysis/weakness, constant numbness/tingling in my hands and feet, extreme weakness and fatigue and the dexterity of a 4 year old. The great news is most people recover fully between 6 months and a year. I was very lucky and blessed to have Chris, my mom and a close family friend in the neurology field which led to a quick diagnosis and intervention before the syndrome could advance to potential paralysis or respiratory distress and ending up on a ventilator! While we are 95% sure of this diagnosis, my MRIs showed lesions on my brain and showed signs of Guillain Barre, but also MS. Due to this, I received treatments for both. My cerebrospinal fluid came back as negative for MS, but only a future brain scan in 3-6 months will rule it out. I cannot wait to get that scan done!! I am improving most days, but the most important thing for me to do is not overdo it to avoid a set back in healing! Currently I’m unable to take care of Hudson and Sullie and can tolerate very little activity due to how much effort and energy it takes. We are in the process of hiring a helper most days in the afternoons and evenings when Chris is working for a couple of months so most house duties and childcare is covered. Where we ask for help would be with dinners and getting Hudson and Sullie to school in the mornings. I have been cleared to drive but I don’t want to take on too much on in the beginning. ANY kind of help is appreciated!! Lastly, please continue to pray for our family and my continued healing. The next 3 months is critical in my recovery. All I want is to be able to play with my kids again without being so fragile! And smiling normal would be nice! Thank you all again from the bottom of our hearts. I hope one day soon we will be able to show our appreciation! All our love, Kelley, Chris, Hudson and Sullie
Special Notes
No Allergies! Best diets to help with healing: Anti-inflammatory diet Mediterranean diet Preferences: nothing spicy, no olives or nuts While we aren’t picky eaters and as much as I love my fried chicken and all southern foods, we are trying to eat healthier and follow a diet to help with inflammation. Here’s a link to information on Guillain Barre Syndrome and foods to include/avoid: https://ameripharmaspecialty.com/guillain-barre-syndrome/best-diet-for-guillain-barre-syndrome/
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