Story
In December of 2023, Allie (Noah's long term girlfriend) awoke to Noah having a grand Mal seizure in bed. Noah awoke shortly after to paramedics taking him to the hospital, where he was diagnosed with epilepsy caused by a possible cyst found in his brain. In May of 2024, during a routine follow-up MRI, doctors reanalyzed, and found that the mass was actually a tumor in the hippocampus of Noah's right temporal lobe, within 1-2mm of the motor cortex. Without a biopsy, doctors believed it was likely either a ganglioglioma (a benign type of glioma that most often occur in children), or a low grade glioma (which is often benign but can mutate into something high grade and malignant at any time). Noah was given the option to wait and continue taking anti-seizure medication while monitoring the tumor every 6 months, or biopsy and remove the tumor. After consulting with top neuro oncologists, neurosurgeons, and neurologists around the country, it became clear that surgery was the better choice. Noah will be undergoing a craniotomy in San Francisco on 12/17/2024 at UCSF Neurosurgery under the care of Dr. Berger to remove the tumor. After a projected 7-10 days in SF, Noah and Allie will return home to Denver, CO and begin what is considered a long and difficult recovery. Dr. Berger has quoted that, on average, patients take around 6 weeks to recover. During this time, the couple would massively appreciate support from friends, family and the community who are able. Noah & Allie have 2 dogs at their home in Denver (Berkeley Hills area), and Allie works at a preschool in Boulder. Thus, they are grateful for any and all types of support, especially in January.
Special Notes
** Support in and throughout January 2025 will be the most helpful as Noah's parents will be returning to California at the end of December / Beginning of January and Allie will be returning to work on 1/6.** Best Ways to Support Noah & Allie Throughout Recovery: 1. Participate in the Meal Train - Bring a home-cooked meal for them to eat for lunch, dinner, or freeze for later. Alternatively, send meals from your favorite restaurants around Denver, or provide gift cards to DoorDash, UberEats, Grub Hub, etc. Noah & Allie don't have any dietary restrictions or preferences but would appreciate well-balanced, healthy, and nourishing meals. 2. Dog Care - Noah will be on bed rest for several weeks, and their 2 dogs, Malakai and Redd, will need several walks each day, as well as food and water. If you have experience with dogs and are able to help care for the boys, especially on week days, that would go a very long way. 3. Help create the most comfortable post-surgery recovery environment by sending gifts from their Amazon Wishlist - https://www.amazon.com/hz/wishlist/ls/3O1TLYQ2XYEF4?ref_=wl_share Please note - when you add an item from the wishlist to your cart, on the delivery page of checkout, the option will be "Noah Levinson Gift Registry Address" 4. Do you work from home in Denver? Consider working from Noah & Allie's house in January. They have an in-home fully functioning office. The idea here is to make sure Noah is not left alone throughout the day during a critical period of recovery when he is most prone to seizures.
Care Calendar
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